Health stories in the news
Researchers share data to tackle Alzheimer’s disease
Researchers who usually keep their findings secret until they are ready to publish their research are freely sharing their data as part of a initiative to find effective Alzheimer’s treatments, writes Gina Kolata in today’s New York Times.
“It was unbelievable,” said Dr. John Q. Trojanowski, an Alzheimer’s researcher at the University of Pennsylvania. “It’s not science the way most of us have practiced it in our careers. But we all realized that we would never get biomarkers unless all of us parked our egos and intellectual-property noses outside the door and agreed that all of our data would be public immediately.”
To learn more:
- Read Kolata’s article: Rare Sharing of Data Leads to Progress on Alzheimer’s.
Seattle family copes with child’s relentless, incurable brain disease
Seattle Times health reporter Carol Ostrom profiles a family with a daughter born with a rare metabolic disorder called Sanfilippo syndrome.
Typically, children with the rare disorder die before their late teens after a relentless degeneration robs them of their cognitive functions, their ability to talk, walk and even chew. There is no treatment.
Ostrom describes the family’s years of uncertainty due to repeated misdiagnoses of their daughter’s condition and their efforts to help researchers find effective treatments.
To learn more:
- Read Ostrom’s article: Local family struggles with Sanfilippo.
- Read the MedlinePlus article on Sanfilippo syndrome.
- Visit the National Institute of Neurological Disorders and Stroke’s webpage on Sanfilippo and related mucopolysaccharidoses syndromes.
Battle for beds in southeast King County
Rob Carson, staff writer for The Tacoma News Tribune, reports on the PR battle over who gets to expand and add hospital beds in southeast King County.
Carson writes:
- Tacoma’s giant MultiCare Health System, locked in a struggle with Auburn Regional Medical Center and Valley Medical Center to expand in the rapidly growing area, has pulled out all the stops with its public-relations machine.
The prize?
- What’s at stake in the competition is access to thousands of underserved patients who live west of Interstate 5 and north of the Pierce-King county line.
To learn more:
- Read Carson’s article: Battle for Beds: Tacoma’s MultiCare vying for SE King County bed spaces.
Category: Alzheimer's Disease, Brain & Nervous System, Hospital News, News, Provider News, Valley Medical Center
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